The New Jersey Metro (which serves Central and North Jersey counties) and Greater Delaware Valley (which serves South Jersey counties) Chapters work in collaboration to advance policy priorities. Priorities are identified through a variety of avenues. For the first time, the Society has agreed to move forward a unified state platform that all states have the option of working on. The three priority issues being addressed include: Medicaid Expansion, MS Education & Awareness and the issue of specialty tiering and cost-sharing for MS medications. In addition, we identify potential issues based on feedback from those impacted by the disease, and legislation that is pending.
Want to see which bills we are tracking and our position? Click here to see the NJ Tracker Report. Do you have a question about any of the bills we are tracking? Do you have personal experience with any of the issues being addressed in any of the legislation? If so, we would love to hear from you. Go to the Share Your Story page and complete the form.
NJ MS Task Force
In 2010, State Senator Fred Madden came to an MS Walk and heard the story of a young woman living with MS. Senator Madden was so moved by her story; he introduced legislation to create the first Task Force in the country that would explore issues impacting NJ residents affected by MS. The Task Force would be made up of a variety of thought leaders, chapter staff and volunteers and department officials that would undergo a yearlong process that would eventually lead to a report providing detailed recommendations for policy, regulatory and legislative changes that would positively impact the lives of people with MS, and their families, in the Garden State.
In January 2012, Governor Christie signed the MS Task Force. For the latest on the work of the Task Force, go to the newly launched website.
Stephanie Hunsinger, Chair, MS Task Force
Stephanie was selected as the chapter representative from the NJ Metro Chapter. She currently works at the chapter as the Advocacy Manager and was selected to chair the Task Force. Please direct any questions about the Task Force directly to Stephanie at the above email.
Sue Barber, MS Task Force Member (insert photo here)
Sue represents the Greater Delaware Valley Chapter on the MS Task Force. Living with MS, Sue is a long-time activist for the National MS Society. Living with MS for over 20 years, Sue is a dedicated volunteer who serves on the Greater Delaware Valley Chapter’s Government Relations Committee.
NJ Caregiver Tax Credits
Caregiving can be physically, emotionally and financially stressful. There is legislation in the state senate that would provide a modest tax credit up to $650 for individuals providing care to a qualified senior family member. While this legislation currently only provides for tax credits for caregivers providing care for a senior family member, we are supportive of the legislation. To urge your state senator to support this legislation, go here to send an email.
Are you a caregiver to someone with MS under the age of 65? We would be interested in hearing your story. Please go to the story bank and complete the online form today.